Chronic and Recurrent Urinary Tract Infection Priority Setting Partnership
The Priority Setting Partnership
The partnership was initiated and is funded by AMR Action UK. We are working together with our colleagues at Bladder Health UK and The Urology Foundation to deliver this important project.
The partnership focuses on bringing together those who live with, or have lived with, chronic and recurrent UTIs, their families and those who care for them. The project is overseen by a steering group of people with lived experience and healthcare professionals who are committed to treating each other as equals in the process and being inclusive throughout.
Take the survey now!
Do you or someone you care for live with a chronic or recurrent UTI? Or are you a healthcare professional who diagnoses and treats people with chronic and recurrent UTIs? Now’s your chance to make a difference by taking a quick survey to submit your uncertainties about diagnosis, treatment and living with chronic and recurrent UTI.
These uncertainties will shape the UK’s research agenda, helping funders and scientists focus on the areas that matter the most to the UTI community.
Your voice matters—whether you’re living with a chronic and recurrent UTI or involved in the care of people affected by these life-changing conditions.
Please share this with others who might want to have their say and use the hashtag #JLAUTI to spread the word!
Background and Aims
The overall aim of the project is to identify the unanswered questions about chronic and recurrent UTIs from patient, carer and clinical perspectives and then prioritise those that patients, carers and clinicians agree are the most important for research to address. To do this, we have partnered with the James Lind Alliance (JLA), a respected organisation that facilitates patient and clinician collaboration to guide research priorities, to complete a Priority Setting Partnership (PSP). This partnership brings together people who live, or have lived, with a chronic or recurrent UTI, and healthcare professionals who care for them to contribute their ideas to shape the direction of future research.
The scope of the chronic and recurrent UTI PSP is:
Children and adults affected by recurrent or chronic urinary tract infection.
Diagnosis of recurrent and chronic UTI
Treatments for recurrent and chronic for UTI
The James Lind Alliance
The James Lind Alliance (JLA) believes that research on the effects of treatments often overlooks the shared interests of patients, carers and clinicians. As a result, questions that they all consider important are not addressed and many areas of potentially important research are therefore neglected.
The JLA method, described in the JLA Guidebook, and this short animation, is designed to change the way research funding is granted, and to raise awareness of research questions (or evidence uncertainties) which are of direct relevance and potential benefit to patients and the clinicians who treat them.
Contact: psp@AMR-Action-UK.org
AMR Action UK
Registered charity number 1157884
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